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Thursday, June 11

Just a smidgen of good news

Well I'm still waiting to hear back from my Neurologist down in Marietta, but I'm hoping that the scans will come up clean. Psst. You wanna know a secret? I have the CD with the scans on it, but I'm too afraid to look at it. Besides it only works on Windows machines. Who uses one of those infernal virus-sucking contraptions anymore anyway? (HA!)

But the real good news is that, after speaking with an Oncologist up at Mayo, I've come to learn that I'm not the only young bearer of a brain tumor to forego chemo and radiation and move on straight to expectant care. (Which is so called because Doctors are 'expecting' the tumor's arrival back in my body, so they test with MRI's rather frequently. Nice.) He said that he had a hand full of patients that were, like me, young, and diagnosed with a completely resected grade III tumor, and get this, they were doing just fine! Apparently, I'm not the only one who fears that Twelve cycles of chemo and a continued dousing of barely sub-fatal doses of radiation may not be the best route for a body desiring to continue with life.

Anyway, it was a HUGE relief to see those words coming from a renowned Oncologist at the top of his game. Before I felt like the only idiot stupid enough to disobey Doctor's orders; now I realize that there're a few of us out there. Knowing that a group of like-minded folks is out there makes me feel like I can beat this thing, and if there's a group of people out there that can beat this, then I know I certainly can too.

2 comments:

  1. it is good to know that you're not alone in making your decision, and dude, if anyone can do it, you can.

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