Well I've discovered today that starting chemo makes my lack of driving ability seem less frustrating as I'm tired (even when i wake up from a nap). This isn't nearly as bad as I feared, so it's a good thing...? Hopefully my tiredness will lend itself to higher energy levels in the days and weeks ahead, but as for right now, I have no desire to do anything. My mom, my niece and I are heading over to Borders to stand around and look at books, and I find myself seriously questioning whether or not I can actually do this.
So I think I need to back up first for a minute and explain some things. I've convinced my oncologist to put me on a dose-sense plan of Temodar. It would seem (according to an informant who is a long-term survivor of Glioblastoma (GBM) that people with negative values on their MGMT tests (done to test the effectiveness of Temodar at Mass. General) actually seem to respond better to Temodar when on this plan. So my plan goes as such: I take 250 mg/day for 7 days then I take 7 days off, repeat. So this schedule will have me on a smaller dose for more days/month. Instead of being on a 5 days of 28 schedule I'm on 7 and off 7.
Well now that I look back, I'm sure I could've stated all this info much more concisely (and probably much less boringly).
So I think in the coming months ahead, it remains truly important that I'm not totally out of it for half the month every month (especially when I'm in school). Though I'm sure that many people have been through much worse, it's still not a very pleasing thought.
Friday, June 25
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dave, i have been thinking of you a lot lately...trying to send you some good vibes. i thought that we should start some art mailings like we talked about before. i think it could be fun...but that's just me...
ReplyDeleteyeah. i call you being it to start it though. (c'mon it'll mean that much more to me...)
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